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Rare Disease

Parents/Families

The 22 Q Family Foundation

Comprehensive Site of resources for families, patients (Camps, Clinics, etc.)     *Highly Recommended*

haga aquí para ver los recursos en español

For Educators:

 “A Teachers Reference for 22Q Deletion Syndrome”.  

Please take some time to understand the common hurdles young people diagnosed with this disorder must face.

Click here to view resources for educators